Read me and #BecomeFibroAware

naked woman in black eyeliner and maroon lips
Photo by Pixabay on Pexels.com

Don’t you find, there’s always someone who starts a conversation with…

‘You know, I think I had fibromyalgia years ago.  I was sick for months with pain as a child……but now I’m fine’.  

I get exasperated when I hear someone say something like this; I want to say to them,

So, you think you know all about fibromyalgia?……

But I just remain calm and agree with them 

O, yes you are probably right’, 

thinking to myself, why did I agree when I know there completely wrong? I now realise they’re not as clever as they think they are!

Fibromyalgia is an illness with NO CURE, it’s not possible that you had it ‘years ago and are now cured’.  

The best doctors in the world have not found a cure for fibromyalgia yet. Look it up on google as, ‘fibromyalgia cure’, it will say there’s no cure.

For anyone who is confused and does not know anything about fibromyalgia,

I will run through the main symptoms.

The main symptoms are:

Pain throughout the whole body 

Joints and muscles feel stiff

Quality of sleep can be poor

Feeling tired and fatigued 

Irritable bowel syndrome (IBS)

Extreme Sensitivity 

Cognitive problems, feeling confused, or dazed, sometimes called Fibro fog

Headaches

Depression 

Anxiety 

Painful periods in women 

The symptoms can vary from person to person.

Symptoms can get better or worse from time to time.

Factors that influence this are:

  • the amount of stress you are experiencing 
  • how much daily exercise you have
  • and changes in climate and temperature 

Further information is available on the NHS website.              

If you think you may be suffering from fibromyalgia, consult your doctor or health professional.

Going back to the fact there’s no cure.

I’ve lived with fibromyalgia for 14 years and found some times are really tough.

I have been able to boost my general health through diet, exercise  and meditation  .

The positives are my symptoms are still there, but have improved greatly since I was first diagnosed.

If you would like to read more about how I achieved this have a look at my Fibromyalgia Self Help or contact me via the link below.

Motivate yourself ? and lose weight….

appetite apple close up delicious
Photo by Pixabay on Pexels.com

If you’re trying to lose weight your probably also trying to find the answer to this question.

It’s even more difficult to do when you’ve got a chronic illness, like fibromyalgia, sapping all your energy and enthusiasm.

I know I lack motivation.

It’s something I’ve been trying to unlock the secret to.

It’s especially true for my diet.

Since my carer went on a low fat diet recently and lost a lot of weight. I’ve also cut back on saturated fat, cheese and cake.

sliced cheese on brown table top
Photo by NastyaSensei Sens on Pexels.com

Now I try to eat low fat alternatives, which is not always easy.

My body wants to eat snacks and other unhealthy food.

I asked my carer how he managed to stay motivated enough to only eat certain foods.

He said he eats enough at meal times to feel full up and only snacks on fruit and healthy alternatives, when he is hungry.

He added.

Once your mind is set on achieving a target weight it’s easier to get motivated to keep working towards it.

Regularly checking your weight and keeping up exercise  which helps to keep the weight down.It’s obviously a formula that’s working for him.

But everyone is different and what works for one person is not necessarily going to help someone else.

You may remember my post about Keeping Positive and Motivated with Fibromyalgia from earlier in the year. I suggested a number of ways to reprogram the mindset, using positive thinking.

I read recently that the opposite is true for some people. Looking at things in a negative way motivates them more. Although I find it difficult to recommend using this technique to motivate, due to the downward spiral of thoughts it can trigger.

I have noticed that it has worked for me in the past. For instance the negative comments of others inspire me to prove them wrong. When someone says,

”You can’t achieve —————”.

”You’re be unable to complete ———“.

I will always prove them wrong and work really hard to achieve that target and surpass it.

Its a bit like us fibro warriors when we pretend to be well and not ill. We’re constantly striving to show we can do things, we want to engage in life and contribute.

To sum up, choosing the best way forward to motivate yourself is something that can be down to trial and error.

A period of experimentation could be helpful to find the way forward. Loosing weight is down to choosing the best motivational techniques for you.

assorted sliced fruits
Photo by Trang Doan on Pexels.com

Keeping Active with Fibromyalgia

woman running on pathway
Photo by mentatdgt on Pexels.com

Now that Spring is here and we are beginning to have lighter evenings. It’s a good time to consider reviewing your fitness and exercise regime if you have one.

After I was was diagnosed with Fibromyalgia in 2004, I found that exercise helped me a lot as I struggled to find things I could do. When you have Fibromyalgia it is a daunting prospect, keeping fit. Particularly starting out for the first time, with a new exercise.

It’s really important to keep as healthy as possible, as your level of stamina fluctuates so much.

I have made a list of everything that has helped me that you could try.

Walking

I found walking to be the most accessible and best for my circumstances.  Walking can help to boost your energy levels and enjoy nature.

If you suffer from low mood, walking on a regular basis is a good non medical therapy, to help feel more positive.

If you are on a low-income, it’s no problem to try out as there is no sign up charges.

If you are new to walking it is best to start with 5 to 10 minutes at first and gradually increase this as your body gets used to the exercise.

You will need to try out a pattern that suits you.

When you first start you may need to get some comfortable shoes and wrap up well with thermal layers on cold days.

Have a look at my post on walking  for more tips.

woman street friends fun
Photo by Skitterphoto on Pexels.com

Hydrotherapy

I found gentle exercise in a warm water pool can help. The water supports your body and has less impact on muscles and joints.

Research has shown that lying in warm water helps the body to relax and lowers pain perception.

A therapist that specialises in hydrotherapy or a qualified physiotherapist that has a good understanding of fibromyalgia, can help you to work out some exercises.

Your local sports centre or gym may have these facilities and let you have a couple of trial sessions.

person feet dipping on pool
Photo by Nadine Wieser on Pexels.com

Pilates

Pilates strengthens the body as a whole, the main aim is to improve core strength. Regular sessions can help to reduce the risk of injury by increasing flexibility.

I  developed my own tailored exercise routine, by trying out different exercises, from visits to a physiotherapy practitioner.

If you go for physio ask the practitioner for advice and help about what exercises are best for you.

I practice these regularly once a day, for about ten minutes in total. Although, I had to work up to doing this amount gradually at first.

person rolling green gym mat
Photo by rawpixel.com on Pexels.com

Sitting Exercises

If you have limited mobility, sitting exercises could be a better option than other ways of exercise.

The NHS website has sitting exercises along with flexibility exercises that might be worth trying.

woman with red top and black shorts on purple yoga mat
Photo by bruce mars on Pexels.com

The NHS live well  website has a lot of really useful tips to get you active.

I hope this short post has given you some new ideas on exercise for Fibromyalgia. My goal is as always to help others with Fibromyalgia and similar invisible illness.

I’m interested in hearing from any fellow sufferers of Fibromyalgia, particularly if you would like to share your experiences on my blog.