I may not look in #pain but…

neon signage

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I have an illness that’s not visible.

Although you cannot see it

For me #fibromyalgia is real.

It causes me #chronic pain and #fatigue.

The pain can be debilitating and constant.

Some days it can get better or worse.

It’s altered my life choices

I’m not asking for sympathy

Just empathy

If you’ve never heard of fibromyalgia or know very little about it. Please take a few minutes to read this.

What is fibromyalgia?

Briefly, it affects the skeletal muscles throughout the body, causing varying degrees of pain.

The pain ranges in severity from day to day and it is affected by temperature,

stress

and the amount of physical activity carried out.

Fibromyalgia sufferers commonly experience a range of different types of pain.

The pain can range from a sharp stabbing pain,

an ache

and a burning pain.

Other symptoms that can be experienced are

fatigue,

poor sleep quality,

stiffness,

IBS,

headaches,

cognitive problems

“Fibro fog”,

depression,

dizziness,

anxiety

and painful periods.

Have a look at the NHS description of fibromyalgia for more in depth information about the condition.

Invisible Illness and Fibromyalgia 

One huge difficulty of living with fibromyalgia is it’s an invisible illness; others assume you are well because there is no physical evidence of being ill.

In my personal struggle with fibromyalgia this single fact has caused me the most stress over the 15 years I have had it.

You may ask, if you know someone or meet someone with fibromyalgia. What should I do?  Showing them compassion and learn about their symptoms can make a difference. Just taking the time to talk about it with them will help.

If you have just been diagnosed and are trying to find links to support groups and the online community. Have a look at the organisations below and also Facebook groups.

UK Fibromyalgia is a brilliant site that covers a wide range of information about fibromyalgia.

Also

Fibromyalgia Association  is a registered charity that provides information and help to sufferers.

Another #Storm?

timelapse photo of trees with background of star

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Stormy Weather

Crackling in front of me

The warm glow of a fire

As I settle down to read 

The rain pours down outside

It’s another grey, murky day

****

Whistling around the building

Strong winds batter

Everything in it’s path

Trees sway precariously

Almost toppling over

****

A crescendo of sounds

Never seems to stop

How much more rain? 

From our winter storm

Wreaking havoc outside

Poem by Nick

 

For a love of books 📚

closeup photography of book page folding forming heart

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My Valentine’s Day love is based on a lifetime of being amongst books.

Visit to the library

Hi there,

Which genre today?

Is it a western?

Crime or thriller,

Romance perhaps,

Sci-fi or fantasy,


Maybe family saga,

I almost forgot, horror,

What about a biography?

Perhaps non-fiction?

A travel book?

Or Poetry…

 

I remember now,

No, I’m looking for,

A green book📚

With golden letters,

I borrowed it,

Last time….

Poem by Nick

What’s your ending to my mystery book poem today?

And, What’s mine?

Well,

Apart from poetry,

It has to be local history.

Anything historical is amazing.

But that’s another story

For another post soon…