For most of us, our lives are basically pretty boring and mundane.
But what if one day you woke up and everything had totally changed?
Sometimes for a brief split second we have a thought and visualise it becoming reality.
How strange and unusual it feels.
Just for a moment now,
and take yourself to that thought.
💭 💭 💭 💭 💭 💭
What did I think of?
I imagined I was free of fibromyalgia
and visiting the Great Barrier Reef in Australia.
I’m looking out onto a perfectly blue sea; staying in a floating hotel 🏨overlooking the reef. I’m going snorkelling around the reef; an I was getting an underwater camera 📸ready to take pictures of the coral reef and the fish.🐠🐟
How did I feel ?
Totally free and like I was visiting a giant tropical fish tank. Swimming around the coral reef, the water was warm. The coral looked like a fantasy underwater garden; the different colours changing as I swam past. 🏊♀️
I hope I have been able to illustrate how it feels to be totally free and able to do anything you want.
The opposite is true living with an invisible illness like fibromyalgia. Plans are broken all the time;
constantly letting others down because your illness is so unpredictable.
Just meeting a friend for a meal is fraught with problems.
Planning what type of food you can eat;
Could it trigger my IBS?
Does the restaurant have chairs with padded seats that are comfortable to sit on for about an hour or more?
Could it start my lower back pains if I am forced to sit on a wooden chair?
On the day I planned to go out, I woke up with pain in my head and feeling disoriented, I’m unable to drive. The meal is cancelled.
Now you are thinking;
and perhaps you’re feeling sorry for anyone with an invisible illness.
Having empathy for someone is a better response; rather than sympathy.
Or to explain this in a better way a quote from the novel,
To Kill a Mockingbird by Harper Lee
“You never really understand a person until you consider things from his point of view…until you climb in his skin and walk around in it.”
Just putting yourself in that persons shoes can give some insight into our version of living; our different view of the world we face on a daily basis.
Perhaps now you could repeat the above exercise, but this time, imagining you have fibromyalgia.
I’ll start you off with how my day can start….
You wake up and you’re legs are aching, as you move to get out of bed a muscle in your back twinges in a spasm. Your in intense pain for a moment, luckily the pain softens. You manage to get out without any other area going into spasms. As you start to get dressed your head feels achey. Your chest feels painful as well…
A great way to start the day and I’ve not got to work yet!